About The Registry

What is involved if I enroll?

The registry works in conjunction with the cancer genetic counseling program. While the cancer genetic counseling program provides individuals with personalized risk assessments and screening recommendations, the registry concentrates on educating individuals and professionals about colorectal cancer. You have the choice to enroll in the registry (collection of information and provision of education), have genetic counseling, or both.

What happens with the information collected by the Registry?

One focus is to collect detailed information on participants and their relatives to create a resource of use to colorectal cancer researchers to advance the understanding of hereditary aspects of the disease. As a registry participant, you may be invited to take part in related research projects. Participation is always voluntary and all information collected and used would be non-identifiable and completely confidential.

Enrolling in our registry does not affect your relationship with, or care by, your personal physician. Our focus is strictly on data collection and education. Privacy and confidentiality are assured. Identity is never disclosed, nor is the information collected in the registry added to your personal medical record. All information is stored in a secure location.